Passport for Care

Name: Passport for Care
Author: Baylor College of Medicine

Baylor College of Medicine

DOCUMENTED

Published in academic literature

For:Researchers & AcademicsClinicians & Healthcare ProfessionalsPatients & Caregivers

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App Summary

Passport for Care is a free online resource designed for survivors of childhood cancer to access their treatment summaries and long-term follow-up care recommendations. Documented in academic literature, a survey of clinician users (N=148) reported a perceived increase in PFC's impact on their application of follow-up care guidelines and on conversations with survivors about potential late effects and recommended screenings. The associated research concludes that web-based platforms like Passport for Care have substantial potential to improve access to health information and enhance awareness of late effects risks and recommended surveillance among patients, families, and healthcare providers.

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Detailed Description

Functionality & Mechanism

Passport for Care (PFC) is a free online resource tool developed to provide survivors of childhood cancer with access to their treatment summaries and long-term follow-up care recommendations. The system generates personalized survivorship care plans (SCPs) by applying advanced algorithms to user-entered exposure data and the Children's Oncology Group Long-Term Follow-Up Guidelines. This web-based clinical decision support tool is designed for use at the point of care to produce individualized screening recommendations.

Evidence & Research Context

The Passport for Care has been documented in academic literature as a web-based support system for clinical decision-making. As of 2022, over 150 Long-Term Survivor clinics used PFC, generating more than 47,000 survivorship care plans.
A 2021 survey of 148 clinician users (representing 64 clinics) found that 93% used PFC to generate personalized SCPs, an increase from 63% in 2012. Other common uses included determining surveillance recommendations, functioning as a clinical database (59%), and documenting late effects (51%).
The same 2021 survey indicated that the perceived impact of PFC on accurate application of guidelines improved from 41% to 72% (p < 0.001), and on fostering conversations with survivors about late effect risks and screening improved from 44% to 70% (p < 0.001).
While 87% of respondents were very or generally satisfied with PFC — essentially unchanged from 90% in 2012 — 48% felt data entry was a modest or significant barrier to application, with 45% estimating over 30 minutes per patient for data abstraction and entry. The peer-reviewed version of this survey reports 17% describing data entry as a significant or insurmountable barrier.
A baseline survey conducted through Passport for Care with 528 survivors found that a significant proportion were unaware of their specific health risks from cancer and its treatment. This establishes the information gap PFC is designed to address rather than measuring the tool's effect.

Intended Use & Scope

Passport for Care is intended for survivors of childhood cancer and their healthcare providers to facilitate evidence-based long-term follow-up care. It supports the generation and management of personalized survivorship care plans. The tool does not replace direct medical consultation or clinical judgment; users should seek further guidance from their healthcare providers for specific medical advice or treatment.

Studies & Publications

6 publications

Peer-reviewed research associated with this app.

Survey/Cross-sectional

Supporting Survivor-Centered Care Through Digital Health Integration.

Marchak et al. (2026) · Cancer

A survey assessed awareness of features and preferred information dissemination strategies for two digital tools among survivorship clinics.

Survivors of childhood cancer face barriers to receiving guideline-based, long-term follow-up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing. As part of a joint initiative to integrate the tools, 18 survivorship clinics using PFC and/or SurvivorLink were surveyed to assess awareness of

Survey/Cross-sectional

Clinician perceptions of Passport for Care, a web‐based clinical decision support tool for survivorship care plan delivery

King et al. (2022) · Pediatric Blood & Cancer

Clinicians reported that the app had a high impact on their adherence to guidelines in clinical practice.

BACKGROUND: The Children's Oncology Group Long-Term Follow-Up Guidelines provide exposure-based risks and recommendations for late effects screening of survivors of childhood cancer. Passport for Care (PFC) is a web-based clinical decision support tool for generating a personalized survivorship care plan (SCP) derived from the Guidelines and user-entered exposures. We assessed PFC clinician user practices and perceptions of PFC impact on clinic

In the Media

Passport for Care and Cancer SurvivorLink Join Forces to Enhance Survivor-Centered Care | Children's Healthcare of Atlanta

Passport for Care is a free online resource tool developed by Baylor College of Medicine and Texas Children's Hospital for childhood cancer survivors, including bone marrow transplant recipients. It provides clinical decision support to determine personalized late effects risk, screening recommendations, and tailored educational resources. The platform offers HIPAA-compliant storage for over 60,000 survivor treatment summaries and guidelines-based surveillance recommendations, giving survivors and their families access to their personalized survivorship care plan. It is available to over 160 Children's Oncology Group (COG) clinic sites and is integral to disseminating COG Long-Term Follow-Up Guidelines.

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