iManageSCD

Functionality & Mechanism

iManageSCD is a mobile health application designed to deliver self-management education and support to adolescents and young adults with sickle cell disease. Developed through a collaborative, user-centered process involving patients, clinicians, and researchers, the system provides resources on disease management, potential triggers, and healthy living strategies. The interface is engineered to support the critical transition period from pediatric to adult healthcare, integrating principles from the Social-ecological Model of Adolescent and Young Adult Readiness to Transition.

Evidence & Research Context

• The app's design is detailed in a development paper outlining a process guided by the Integrate, Design, Assess, Share (IDEAS) framework.
• Its architecture is grounded in the Social-ecological Model of Adolescent and Young Adult Readiness to Transition, ensuring a person-centered approach.
• Development incorporated qualitative input from a multidisciplinary team (N=16) including adolescents and young adults with SCD to inform content and user experience.
• Initial point-of-use feedback from the target user population indicated feasibility and acceptability of the application's design and core features.
• The application is slated for use in the COMETS (Community Health Workers and Mobile Health Programs to Help Young Adults with SCD Transition) study.

Intended Use & Scope

iManageSCD is designed for adolescents and young adults with sickle cell disease as an adjunct self-management and educational tool, particularly during the transition to adult healthcare. The application provides support and information; it is not a diagnostic tool and does not substitute for professional medical consultation or direct treatment planning.