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FamilyFOCUS at Dana-Farber icon

FamilyFOCUS at Dana-Farber

Evidence Tier:DOCUMENTED

Published in academic literature

For:General Public & EnthusiastsPatients & Caregivers

App Summary

Grounded in principles of family-centered care, FamilyFOCUS at Dana-Farber provides adult children with expert guidance and practical tools to support a parent with cancer. The associated research describes the importance of a collaborative practice model for fostering shared responsibility between providers and families to improve the quality and safety of care. The authors conclude that such a model is a powerful tool for preparing all parties for quality practice, which the app supports by directly empowering family caregivers.

App Screenshots

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Detailed Description

Functionality & Mechanism

Developed at Dana-Farber Cancer Institute, FamilyFOCUS is a support application delivering guidance and practical tools for adult children caring for a parent with cancer. The system presents a curated library of expert-backed content modules focused on common caregiving challenges. These modules deliver information on managing medical logistics, navigating family dynamics, and engaging in advance care planning. The interface facilitates direct access to targeted resources designed to support caregivers throughout the diagnostic and treatment journey.

Evidence & Research Context

  • The application's design is grounded in the principles of a patient- and family-centered care model, which extends support to the entire family unit.
  • Associated research from the developers emphasizes collaborative practice models that position family caregivers as integral members of the care team.
  • This framework acknowledges the significant logistical and emotional burdens on caregivers and aims to provide structured, accessible support to mitigate them.

Intended Use & Scope

This tool is designed specifically for adult children serving as non-professional caregivers for a parent with cancer. Its primary utility is as an adjunct informational and emotional support resource. The application provides psychoeducational content and practical tips; it does not constitute medical advice or formal psychological counseling. Users must consult with healthcare professionals for clinical guidance.

Studies & Publications

1 publication

Peer-reviewed research associated with this app.

Non-Evaluative Reference

A Patient- and Family-Centered Care Model Paves the Way for a Culture of Quality and Safety

Reid Ponte et al. (2008) · Critical Care Nursing Clinics of North America

Referenced in academic literature; no direct evaluation of the app
Clinical simulation used in a collaborative practice approach is a powerful tool to prepare health care providers for shared responsibility for patient care. Clinical simulations are being used increasingly in professional curricula to prepare providers for quality practice. Little is known, however, about how these simulations can be used to foster collaborative practice across disciplines. This article provides an overview of what simulation is, what collaborative practice models are, and how to set up a model using simulations. An example of a collaborative practice model is presented, and nursing implications of using a collaborative practice model in simulations are discussed.
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FamilyFOCUS at Dana-Farber

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