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iaya

Evidence Tier:VALIDATED

Preliminary research — inconclusive findings

For:General Public & EnthusiastsPatients & Caregivers

App Summary

iaya is an app designed for young adults with cancer that provides coping skill exercises and a peer support community to help manage the emotional challenges of their diagnosis. A preliminary pilot study (N=25) found the app was acceptable to users, with a mean usability score of 73.7%. Based on these initial findings, the authors conclude the app may be most beneficial when integrated as part of a broader psychosocial care plan.

App Screenshots

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Detailed Description

Functionality & Mechanism

Developed by the Dana-Farber Cancer Institute, iaya is a web-based psychosocial support platform for young adults with cancer. The system delivers coping strategy courses and facilitates peer-to-peer connection through community forums, private messaging, and a geolocation feature. Its interface also integrates an event calendar for institutional Young Adult Programs and a curated directory of cancer-specific resources. The platform is structured to provide both psychoeducational content and a virtual support community to address users' emotional needs.

Evidence & Research Context

  • A single-group pilot study (N=25) evaluated the feasibility and acceptability of the app among young adults (ages 18-39) undergoing active cancer treatment.
  • The intervention demonstrated acceptability, achieving a mean usability score of 73.7%, which surpassed the study's predefined threshold of 70%.
  • As a stand-alone intervention, the app did not meet a priori feasibility criteria, with only 9% of participants reaching target engagement levels over 12 weeks.
  • The authors concluded that future implementation should consider integrating the app within a broader program of psychosocial care rather than as a stand-alone tool.

Intended Use & Scope

This platform is intended for young adults with cancer seeking peer support and supplemental coping resources. Its primary utility is as an adjunct tool to facilitate community connection and provide psychoeducational content. The app is not a substitute for clinical psychosocial care or professional mental health services, and its efficacy in improving patient-reported outcomes has not been established.

Studies & Publications

1 publication

Peer-reviewed research associated with this app.

Pilot/Feasibility Study

Feasibility and Acceptability of a Smart Phone Application Intervention to Enhance Coping for Young Adults with Cancer

Poort et al. (2020) · Journal of Medical Internet Research

Feasibility concerns identified: only 9% of users met engagement thresholds despite acceptable usability.

Background: Many young adult patients do not receive adequate psychosocial services to help them cope with cancer. Objective: This study aims to assess the feasibility and acceptability of a smartphone app (iaya) intervention that was designed to create an engaged community of young adult patients and help them learn emotional coping skills. Methods: For this single-group pilot trial, 25 young adult patients aged 18-39 years who were receiving active cancer treatment were asked to use the iaya app for 12 weeks. To collect app use data, we used Mixpanel, an analytics platform for apps. Feasibility was assessed through rates of app sessions and the number of coping exercises engaged, and intervention acceptability was evaluated by using an app usability questionnaire and through qualitative interviews at study completion. We collected patient-reported outcome data at baseline and at week 12 to explore self-efficacy for coping with cancer, self-efficacy for managing emotions, perceived emotional support, and quality of life. Results: Baseline patient-reported outcome data indicated that participants scored relatively low on perceived emotional support but reasonably high on self-efficacy for coping with cancer and managing emotions as well as quality of life. Participants had a mean of 13 app sessions (SD 14) and 2 coping exercises (SD 3.83) in 12 weeks. Only 9% (2/23) of participants met our combined feasibility definition of 10 or more app sessions and 3 or more coping skills from different categories. The mean app usability score was 5.5 (SD 0.8) on a 7-point Likert scale. Qualitative interviews revealed that participants appreciated the app's sense of community and educational content about coping skills. Conclusions: Although perceived acceptable by patients, the iaya smartphone app did not meet the a priori feasibility criteria as a stand-alone app intervention. Future studies should screen participants for unmet coping needs and consider integrating the app as part of psychosocial care for young adult patients. Trial Registration: ClinicalTrials.gov NCT03538444.
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iaya

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